My friend De has created a photo to be shared that provides information about ichthyosis and features her son. It's in response to a photo of a baby with ichthyosis circulating on Facebook. Like and share if you want to create actual awareness of this condition.
I have very little Internet access at the moment and cannot blog as much as I want to. I plan to write further on this matter, so stay tuned.
You would think that people would learn from the numerous social media hoax's. If a picture has information and can help people to learn then that is great. Simply sharing a picture because it says 'share if you have a heart' isn't helping anyone.
ReplyDeleteI look forward to reading more when you have better internet access.
Thanks, Carly. Jennifer and I wrote a response on our own blog, confettiskin.com : http://confettiskin.com/wp/2012/12/29/moura-facebook-response/
ReplyDeleteglad am not on facebook #thatIsAll #mumWithAChildWithDisability
ReplyDelete#spreadingDisabilityAdvocacyOnTwitterOnly
@cubbieberry