Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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22 October 2012
Warning: the following pictures may evoke food envy. Dessert feast.
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I never thought one of my most pleasurable experiences would be in a cafe in Windsor with a group of women. My senses are now yearning for t...
14 comments:
21 October 2012
Sunday snippets
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Sunshine at Federation Square Food history exhibition - Gusto - at the State Library of Victoria Local wildlife in Fitzroy Toy goodness at ...
3 comments:
500 Humans in Canberra
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A few weeks ago I received an email telling me I have been successful in winning a trip to our nation's capital, Canberra, as part of t...
3 comments:
18 October 2012
Our disabilities do not inconvenience you.
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(source) Our disabilities do not inconvenience you. You do not have to be an example of (workplace) diversity every day. You do not h...
11 comments:
15 October 2012
The dermatology conference speech - shifting the roles from patient to speaker.
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On Saturday I spoke at a dermatology training conference at my hospital. I gave an updated version of my Appearance Matters speech . (I adde...
9 comments:
14 October 2012
My week in pictures
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I went to an exhibition opening last week with my friend Mitch. It was at Flinders Lane Gallery for an Albury artist Jo Davenport . There wa...
4 comments:
13 October 2012
Mamamia article
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Lots happening, I will tell you about that soon. I saw a flying pig in Bourke St Mall yesterday. It reminded me that anything is possible if...
2 comments:
12 October 2012
Croissant and butter pudding. Definitely a sometimes food.
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Last weekend I made the best version of bread and butter pudding ever. A few people have asked me for the recipe, and it was so yummy it des...
3 comments:
10 October 2012
Genetic testing and (de)selection for Ichthyosis. What would I do?
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If I fall pregnant, I will be able to genetically test for Ichthyosis in the womb. There is a one in eight chance for me to pass on my con...
15 comments:
09 October 2012
Unwanted medical advice
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Pop over to Kiki and Tea to read why I don't want medical advice from someone other than my doctor. I don't want alternative creams,...
1 comment:
08 October 2012
Interview with Paul de Gelder - shark attack survivor.
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Last month, I met a man that I call Superman. Paul de Gelder was the keynote speaker at the Layne Beachley Aim for the Stars bal l. He talke...
4 comments:
05 October 2012
October Grey
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I hate my memory. It is too good. And some of my saddest and loveliest moments are lodged in there, like jam in the indents of its jar. N...
13 comments:
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