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Showing posts with label ichthyosis meet. Show all posts
Showing posts with label ichthyosis meet. Show all posts
16 September 2016

Australian Centre for Leadership for Women Diversity Awards

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On Wednesday night I had the pleasure of attending the Australian Centre for Leadership for Women Diversity Awards in Sydney. From the web...
28 May 2015

What we learnt at the Australian Ichthyosis meet.

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We learnt so much at the Australian Ichthyosis Meet . We learnt from doctors and nurses, but more importantly, from each other. I was ...
3 comments:
12 May 2015

All about the Australian Ichthyosis Meet. So much friendship, advice and love.

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Saturday 9 May was the day of the first Australian Ichthyosis Meet at the Melbourne Zoo. I have been planning it since September 2014 - and ...
8 comments:
30 April 2015

MEDIA RELEASE: Australia's first national Ichthyosis meet. (Peer support meet comes to life at Melbourne Zoo in May)

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MEDIA RELEASE 30 April 2015 Peer support meet comes to life at Melbourne Zoo in May Appearance activist Carly Findlay, in partnership w...
1 comment:
18 March 2015

The most important thing I have learnt since my first blog post post.

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A blogging agency asked the question: show us your first blog post, and what have you learnt since then? Such a great question! This was m...
4 comments:
25 February 2015

Maya is a seven year old who is excited about the Australian Ichthyosis Meet. "I could do with some more friends like my sister."

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The Australian Ichthyosis Meet is now at capacity - with 71 patients and family members registered. Sponsors have come on board (I will ann...
2 comments:
28 January 2015

Why Lucia wants to attend the Australian Ichthyosis Meet. "It will feel awesome to be in a room with no-one staring at me!"

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I have been receiving gorgeous letters from people who are attending the Australian Ichthyosis Meet in May. For many patients and families, ...
1 comment:
02 January 2015

You are invited to the Australian Ichthyosis Meet - May 2015

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When I was a child, I hadn't met anyone else with Ichthyosis. I thought I was all alone. Since I have been blogging, I've com...