You know how I love podcasts. I wrote about them here and here . I only just noticed one of my small screen (and now podcast) queens tweete...

Although it's a workday, I've got wine flu. Our four-show season of Quippings at Melbourne Fringe Festival ended last night. We ce...

I'm taking some time out. Completely overwhelmed, about many things.  See you soon. Thanks to so many of you for checking in on me. 

On Friday I finished up at my day job. I'd been working in that role for eight years, minus about a year and a half when I did two or t...

UPDATE: 3 October - the video has been taken down. Victory! Read about that on the South China Morning Post . Dear Susan Wojcicki, CEO YouT...

This post was written for I Support the Sisterhood - Jordy Lucas' project. It's a website showcasing the talents of women doing g...

I receive emails from journalists and media makers asking me to tell my story about life with ichthyosis about once a month now. Most of t...

(Picture via I refuse EB )   I am devastated. It makes me so sad and angry that skin conditions can be fatal. I woke up to read my o...

When I wrote the article (and then blog post) about parents oversharing about their children's disabilities online , I wasn't sure w...

This past week, the world was talking after seeing the image of a little Syrian boy washed up on the shore. Heartbreaking. Three year old ...

It's just over six months until our wedding! Six months. I cannot believe how fast the time has gone. When I think forward to our big d...

Five years ago I sold my blog for a bar of chocolate . I don't enjoy cheap chocolate. Yet I gave up space on my blog to advertise cheap ...

In May I shared Julius' story . Julius has just turned one and lives with his family in the Philippines. He has Harlequin Ichthyosis....

No matter how much I say I don't let Ichthyosis stop me, or I can do almost anything despite of it, the reality of Ichthyosis is that it...