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31 May 2015

Ichthyosis Awareness Month - my story: "I've built a strong sense of resilience - both through having Ichthyosis and as an online writer."

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It’s the last day in May, and that means Ichthyosis Awareness Month comes to an end. 47 blog posts were published in May - and that’s ...
18 comments:
30 May 2015

Ichthyosis Awareness Month - Robin's story: "If you look around you can meet wonderful people."

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Tonight is Robin's story - the last for Ichthyosis Awareness Month. Robin writes of life with Lamellar Ichthyosis . She has three child...

Ichthyosis Awareness Month - Mary's story: "The relief of finding other people with similar skin is very liberating."

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I met Mary around two years ago on my Facebook page . Mary has Ichthyosis Vulgaris.  But at the time we chatted, I didn't know it. She w...
3 comments:
29 May 2015

Ichthyosis Awareness Month - Atique's story: "If you to start your life over knowing what you know today, what would you change?"

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Atique is 24 years old and from Pakistan and has lamellar ichthyosis . Atique's Ichthyosis has provided inspiration to study medicine ...

Ichthyosis Awareness Month - Cora and Ashlynne's story: " At the age of 12, she is not ashamed or embarrassed of her Ichthyosis, but she is truly comfortable in her own skin."

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I've been following Cora's blog for a while - I admire how she writes about coming to terms with her daughter Ashlynne's Confet...
3 comments:
28 May 2015

What we learnt at the Australian Ichthyosis meet.

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We learnt so much at the Australian Ichthyosis Meet . We learnt from doctors and nurses, but more importantly, from each other. I was ...
3 comments:
27 May 2015

Ichthyosis Awareness Month: Casey and Chaz's story: "We see Chaz as our one in a million and we are so lucky to have him in our life."

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Last year I received an email from a dermatologist asking if he could pass on my blog to new parents of a little baby with Ichthyosis. He...
1 comment:

Ichthyosis Awareness Month - Annaliese and Jossilynn's story: "Teaching friends, family, and even sometimes doctors about Ichthyosis can be very rewarding, but also very tiring."

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Today Annaliese shares her story of being a mum to Jossilynn - a little girl with  Epidermolytic Ichthyosis . I really like how she acknowle...
26 May 2015

Ichthyosis Awareness Month - Becky's story: "I realize that being normal is what I am."

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Tonight Becky tells her story of life with Lamellar Ichthyosis . It took her a long way to come to terms with her condition - and the turnin...