Hello from London! Adam and I are on our honeymoon until late October. We're seeing three big cities and a few places in between.  I...

  In July I was alerted to some children in Wajir, Kenya who are suffering terribly from Ichthyosis . I rarely use the term 'sufferin...

On Wednesday night I had the pleasure of attending the Australian Centre for Leadership for Women Diversity Awards in Sydney. From the web...

  Last week, an article was published about two young siblings in India living with Lamellar Ichthyosis . The article describes the chil...

  It's an exciting week for disability-inclusive fashion - from chainstore to runway. Two young Australian women featuring in the Targe...

I set up a Patreon account! Through my blog and social media, I share personal lived experiences of what it's like to have ichthyosi...

There's a funny irony in writing this. I started writing this in mid July. I called for quotes, did some research and expected to knock ...

On a recent Friday evening, I finished work with the excitement of a weekend full of reading and cooking. I headed down to my local bookstor...

  This article from Stock News USA came up in my google alerts yesterday morning. You can read the full text here.   "Sufferin...