Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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20 May 2016
Ichthyosis Awareness Month: Crystal's video
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Today as part of Ichthyosis awareness month, I'm sharing a video from Crystal. She talks about the difficulties of getting and keepin...
16 May 2016
Going to the dentist.
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On Friday, I stepped out of work to do a speech at pretty exciting event. You can read about that on my Facebook . About 15 minutes before...
5 comments:
13 May 2016
Ichthyosis Awareness: using Moo Goo cream to de-scale my scalp.
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I'm a pretty private person when it comes to the actual maintenance of my skin. Not many see me washing my face or the scattering of sk...
2 comments:
11 May 2016
Our wedding day: styling it beautifully.
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Styling our wedding was such such a highlight. I started planning how the wedding would look pretty much the day after Adam put a ring on it...
1 comment:
09 May 2016
When the media directs you not to google Ichthyosis - and how I'm changing that.
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Content warning: this post contains screen shots featuring hate speech about Ichthyosis, and examples of ableist media representation of th...
9 comments:
06 May 2016
Ichthyosis Awareness Month: Rethinking Kindness - a guest post by Ainsley Kyder-Gould. (Plus download True Blue Hand.)
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I first met Ainsley and her husband in January 2015. Her little girl has Ichthyosis. We chatted for hours - exchanging anecdotes and advi...
4 comments:
03 May 2016
Our wedding day: the video.
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A few weeks before the wedding, I realised I wanted a videographer. Friends suggested I ask a blogger who enjoys making videos, and I did! I...
4 comments:
01 May 2016
Ichthyosis Awareness Month 2016 - we must move past raising awareness.
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It's May and that means it's Ichthyosis Awareness Month. This isn't my usual chipper post. This is me being cynical. From the ...
10 comments:
28 April 2016
Our wedding day: all the pretty dresses
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It's been so much fun writing about the wedding! I can't believe it's more than a month ago. This post is the topic that everyon...
2 comments:
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