Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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23 October 2015
It's less than five months until the wedding!
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With just under five months to go until the Big Day, wedding planning is in full swing. It certainly helps that I was an event planner fo...
2 comments:
21 October 2015
Thirteen things I learnt from Turia Pitt at Business Chicks.
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Last week I saw Turia Pitt speak at a Business Chicks event. When I got the email from Business Chicks to tell me Turia Pitt was talking a...
1 comment:
19 October 2015
The Good GP - crucial for patients with rare medical conditions. (Brought to you by The Royal Australian College of General Practitioners.)
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One of the most difficult things about having a rare medical condition is that I feel like a lesson for doctors. I've written previously...
5 comments:
17 October 2015
A little vote for a big cause - Kidspot Voices of 2015 Alumni for the Heart and Lung Transplant Trust of Victoria
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( Click to vote ) See those two beautiful ladies either side of me? They're Rebecca and Camille. They're transplant recipients. Gene...
1 comment:
15 October 2015
On being unhappy with my body - not feeling I'm the right size for me.
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I've written about getting on and falling off the exercise wagon a few times now. Before I met Adam I was really enjoying it . I was com...
7 comments:
12 October 2015
What it feels like to go viral.
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It has taken me so long to write this post. Almost two years of processing my feelings and drafting my words. Because the impacts of going...
26 comments:
10 October 2015
The occupational hazards of being a blogger. On snark.
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Yesterday I found myself the subject of nastiness on a snark site. It's happened to me a few times, but these words have been the most b...
12 comments:
08 October 2015
The public gaze - on being invited to be a subject of the Body Bizarre documentary.
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Last month I wrote some advice you might like to consider when approached by the media to tell your story about your rare medical condition/...
12 comments:
05 October 2015
Eight ways to use Instagram to build a strong chronic illness community.
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I recently wrote about my love for Instagram - sharing advice from Jadah Sellner and showcasing my favourite accounts. I mentioned how m...
1 comment:
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