Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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29 June 2015
My unborn child has inspired me to think about disability and genetics and the value of a life.
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I wrote this for the Amazing Babes event at the Emerging Writers Festival. Gosh I was nervous about reading it out. I cried when I read it t...
22 comments:
25 June 2015
Fangirl.
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It was almost two years ago that I saw Tavi Gevison speak at the Melbourne Writers Festival . She was 17 at the time, and had equal amo...
7 comments:
22 June 2015
What an editor's rejection letter taught me.
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I got a heart-sinking rejection email from an editor this month. I had written a few posts for an entertainment website and was quite ...
19 comments:
19 June 2015
Bloggers with disabilities on No Limits.
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You might remember that late last year I was invited back to produce and anchor an episode of No Limits on Channel 31. My dear friend Ka...
1 comment:
18 June 2015
Make a stranger feel like they're your friend.
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I took a trip on the train to the country this week. The train was not fully booked, and so I sat on the seat opposite to the one I’d be...
7 comments:
17 June 2015
Finding my Hair Romance (Still not Rapunzel, and that's ok.)
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This post was originally written for my friend - blogging and hair superstar - Christina who is The Hair at Hair Romance . I was so excited ...
15 June 2015
Life hacks for managing chronic illness and disabilities.
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I have to be innovative to manage Ichthyosis. My feet have been in excruciating pain. They went through their annual shed - the skin ...
5 comments:
11 June 2015
Comic-Con: accessibility, appearance diversity, escapism and fittingin. (Giveaway closed.)
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I have been given tickets to Oz Comic-Con in exchange for writing this post. I have not been paid to write it, though I’ve done a truckload...
15 comments:
09 June 2015
A taxi driver restored my faith.
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Last month I went to a conference in Canberra. I was a speaker there. I caught a taxi to and from the airport. I had a long chat with t...
3 comments:
08 June 2015
Winter days and a recipe for apple and pawpaw crumble
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I am loving winter. Apparently it's one of the coldest starts to winter in Melbourne's history - with five degree mornings and day...
1 comment:
01 June 2015
Ichthyosis and pride. A bloggy break.
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Photo by Rick Guidott i As Ichthyosis Awareness Month came to a close, I thought of the stories shared on my blog and across social...
2 comments:
31 May 2015
Ichthyosis Awareness Month - my story: "I've built a strong sense of resilience - both through having Ichthyosis and as an online writer."
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It’s the last day in May, and that means Ichthyosis Awareness Month comes to an end. 47 blog posts were published in May - and that’s ...
18 comments:
30 May 2015
Ichthyosis Awareness Month - Robin's story: "If you look around you can meet wonderful people."
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Tonight is Robin's story - the last for Ichthyosis Awareness Month. Robin writes of life with Lamellar Ichthyosis . She has three child...
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