Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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30 October 2013
When empathy hurts. Seeing skin conditions on screen
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A friend sent me a link to a documentary called My Skin is Killing Me - it's about two people with severe skin conditions - a young ...
8 comments:
28 October 2013
Appearance diversity: Scary face at Halloween
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( source - Picture by Quentin Blake, from Roald Dahl's Witches ) When I was a small child, about three years old, I had a Sno...
21 comments:
25 October 2013
Appearance diversity: Living Without Skin - Life with Epidermolysis Bullosa.
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I first met Nikki online when she read my blog back in 2011. I think she left me a comment and I contacted her by Facebook. Nikki has a rare...
23 October 2013
Chase that feeling
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"And I’m a chase that feeling, Take that pain and replace that feeling, And I’m a take that healing then, Stand so tall they’ll have to...
3 comments:
21 October 2013
Things I haven't told you about my Ichthyosis.
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I was chatting to Pip Lincolne and Alex Brooks (from Kidspot ) at the world's best breakfast buffet ( QT hotel on the Gold Coast ) an...
12 comments:
18 October 2013
Conversations with a Creative - Rulitos
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This is the first of my Conversations with a Creative series. I'm a big fan of handmade, especially jewellery, and I wanted to explore ...
12 comments:
16 October 2013
Educating girls: Malala Yousafzai, I Am A Girl and Girl Rising.
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I'm in awe at how passionate activist, 2013 Nobel Prize nominee and survivor, Malala Yousafzai is about educating herself and ensuring...
6 comments:
14 October 2013
I don't want to be someone's heroic choice or the person they were too afraid of getting to know.
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A friend told me that looking different is a pretty good dickhead filter. I've also found that barriers for people who look different...
30 comments:
11 October 2013
The Step Changer panel at the Problogger Event - "Going beyond what everyone else is doing is what brings success."
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(Pic via Mrs CeeCee ) My favourite session at the Problogger Event (pbevent) was the discussion between three of the nicest ladies in t...
8 comments:
09 October 2013
A letter to little ones born with Ichthyosis or a visible difference. A letter to little Me.
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Dear all the little ones born with Ichthyosis or a visible difference, and dear little Me: I want you to know that it will be ok. Li...
6 comments:
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