Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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11 September 2013
On unwanted prayer and pity (or misplaced good intentions).
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I'm on holidays. A staycation now and a short vacation tomorrow. It's been nice - I've done some writing and pitching, some tr...
23 comments:
09 September 2013
Appearance diversity: Ashton's story - a little boy with Sturge Weber syndrome."We're happy to explain and educate but it's people's rudeness that really bothers us."
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A little while ago I was tweeted at by Ashely Ide , a British man, raising awareness about visible difference. His son Ashton, has Sturge-W...
1 comment:
06 September 2013
I don't want to spend time doing stuff that is not fun.
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When you do things that are fun, it doesn't seem like work. I recently heard two influential writers - Tavi Gevinson and Khairani Ba...
8 comments:
04 September 2013
On (not) blogging about matters of the heart.
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The more I blog, the more I keep to myself . In my experience (and also of other bloggers I know), being open and vulnerable is what d...
12 comments:
02 September 2013
Experience relayed from patient to parent.
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A couple of weeks ago I met baby Matilda and her mum Cheryle at the Royal Children's Hospital. Cheryle and I have become friends very ...
16 comments:
28 August 2013
A little taxi driver update and a request.
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One of the outcomes I requested after being verbally abused in a taxi in July was that all drivers receive ongoing disability awareness tra...
4 comments:
26 August 2013
Tavi Gevinson at Melbourne Writers Festival 2013: a wondrous conversation.
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"Meaning lies in the magic of the coincidence that you should come across work at just the right time." ~ Tavi Gevinson at Melb...
7 comments:
23 August 2013
The wind brings change.
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It's been horribly windy in Melbourne these past few weeks. It's cold too, rainy most days, and the sun struggles to pierce the g...
5 comments:
21 August 2013
Hope and resilience
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( source ) It's hard to describe the pain of sore skin. It's burning, throbbing, restricting, drying and weeping simultaneousl...
10 comments:
19 August 2013
[Video] Samuel Johnson gives an update on Love Your Sister
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Last Friday I caught up with Samuel Johnson from Love Your Sister while he's spending some time in Melbourne. You may remember my inte...
3 comments:
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