Today was a very important day of my trip, and perhaps of my life. I met little Jack Oldacres and his parents Julie and Danny. We have been ...

So my friend in the UK, Matt Jeffries has started a website for little Jack Oldacres who was born with Netherton's Syndrome. You may rec...

I read this article this morning. It's about a little boy with Netherton's Syndrome (the same variant of ichthyosis I have). Jack O...