Telling my story of what it's like to live with Ichthyosis and a visible difference. Loving life!
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Showing posts with label
fundraising
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Showing posts with label
fundraising
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28 January 2015
Why Lucia wants to attend the Australian Ichthyosis Meet. "It will feel awesome to be in a room with no-one staring at me!"
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I have been receiving gorgeous letters from people who are attending the Australian Ichthyosis Meet in May. For many patients and families, ...
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