tag:blogger.com,1999:blog-1720872153813357167.post8939488445192333593..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month - Kaleigh's story: "Life is short and I’m not going to spend it letting my condition run my life."Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1720872153813357167.post-58556100664380385242015-05-19T11:15:11.412+10:002015-05-19T11:15:11.412+10:00Great story!! Our daughter also has Netherton Syn...Great story!! Our daughter also has Netherton Syndrome. Thanks for sharing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-80796598606965742232015-05-19T10:21:48.731+10:002015-05-19T10:21:48.731+10:00Great story and what a smart beauty!Great story and what a smart beauty!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-39254942421707658102015-05-19T08:26:11.582+10:002015-05-19T08:26:11.582+10:00Kaleigh, you make me smile! You are so strong, and...Kaleigh, you make me smile! You are so strong, and so are your parents and sister! I hope my son with NS grows to be as well-rounded and strong as you are!Anonymousnoreply@blogger.com