tag:blogger.com,1999:blog-1720872153813357167.post4343668344961410140..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month: My story.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger36125tag:blogger.com,1999:blog-1720872153813357167.post-65966657200861003512015-06-18T01:58:09.323+10:002015-06-18T01:58:09.323+10:00Thank you for being you! I've learned so much ...Thank you for being you! I've learned so much from you here Carly! Thank you XxSandra Kellyhttp://www.sandrakelly.menoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-87042199313096676802013-09-27T17:20:03.635+10:002013-09-27T17:20:03.635+10:00If it were me (and this is only me, I expect no on...If it were me (and this is only me, I expect no one else to feel this way), I'd want a cure, but not because of my appearance, or maybe not only. No, I'd want it just so I wouldn't have to worry about drying out anymore, so I could cool off without so much effort. That would be the big deal for me. Feeling better.<br /><br />As far as I know, my worst physical problem is being overweight. I'd love it to go away. Not to look better--I have always looked a little funny, even before I got fat. But because it would feel so much better to not have to stuff bits into my clothes at funny angles.<br /><br />There are practical reasons for wanting this stuff. Except it's not so practical after all when you know none of it's possible. But making the best of it IS possible, and you have done an awesome job of that.Dana Seilhanhttps://www.blogger.com/profile/11749354913843954242noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-67637436397426380842013-08-31T16:11:59.300+10:002013-08-31T16:11:59.300+10:00I agree with myself. Very touching read second tim...I agree with myself. Very touching read second time round too xSlapdashMamahttps://www.blogger.com/profile/03395454257023289058noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-3647137404288329962013-08-30T21:37:07.152+10:002013-08-30T21:37:07.152+10:00Carly, I read this when you first posted it, as we...Carly, I read this when you first posted it, as well as many of the other stories. My feelings then and now are the same. I am completely in awe of your courage. To face down the ignorant and sometimes ugly attitudes of some people, while try to educate the rest of us about icthyosis, is both brave and generous. You must be very proud of what you've achieved.<br /><br />Thank you for linking up and adding your story. I feel very honoured that you did xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-34525942656084848292013-08-29T14:54:11.126+10:002013-08-29T14:54:11.126+10:00I loved how you said you realised you were making ...I loved how you said you realised you were making a difference by just being you. So true. You really are. Congratulations. xoNesshttps://www.blogger.com/profile/06860187504607445377noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-45585056838572311392013-08-29T14:20:29.347+10:002013-08-29T14:20:29.347+10:00Hi Carly. I read your piece via The Lounge link-u...Hi Carly. I read your piece via The Lounge link-up. I have a tendency to make rather wry comments on people's blogs but, in your case, I was so moved by what I read that I wouldn't dare! Thanks for posting and linking. <br /><br />I also googled "harlequin ichthyosis" images to spite those guys on Twitter.Ed @ The Tunnelhttps://www.blogger.com/profile/12907636468233275738noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-68959823756851148772013-06-30T23:19:59.712+10:002013-06-30T23:19:59.712+10:00What a great post and a fantastic cause! Congrats ...What a great post and a fantastic cause! Congrats to you for raising awareness by sharing your story. Your photographs are stunning. That Ulyana knows exactly what she's doing! DPBC visitor XAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-18675358422178951622013-06-08T14:31:40.384+10:002013-06-08T14:31:40.384+10:00What a beautiful post. Thank you for writing it, a...What a beautiful post. Thank you for writing it, and for sharing it! Clicking back through to read the others now. xEmilyhttps://www.blogger.com/profile/15636757667368447102noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-88186667797611485652013-06-08T13:31:36.744+10:002013-06-08T13:31:36.744+10:00Carly, I just discovered your blog via digital par...Carly, I just discovered your blog via digital parents carnival and am thrilled I did! Thankyou for sharing your story, your life your pics you are amazing and I have learnt so much. bronSmithsholidayroadhttps://www.blogger.com/profile/03614441021886602077noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-86159434289797642642013-06-06T11:48:42.714+10:002013-06-06T11:48:42.714+10:00Thank you for entering your post in the DP Blog Ca...Thank you for entering your post in the DP Blog Carnival!Your Cheeky Monkeyhttps://www.blogger.com/profile/06666404519772034016noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-12625183601862758592013-06-02T18:33:54.252+10:002013-06-02T18:33:54.252+10:00mwah to you for being so super ace.mwah to you for being so super ace.GourmetGirlfriendhttps://www.blogger.com/profile/14540195749908936684noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-4914348584292729732013-06-02T16:07:38.906+10:002013-06-02T16:07:38.906+10:00Hi Carly, I hope you will believe me and allow me ...Hi Carly, I hope you will believe me and allow me to compliment you on how stunning you look in your white dress. I just live it. I don't think I will be able to meet you next week as I have come down with Bronchitis. Enjoy the Accolades you deserve it. Pauline xxxAnonymoushttps://www.blogger.com/profile/13383141359417690635noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-69761640766116173512013-06-02T16:06:05.410+10:002013-06-02T16:06:05.410+10:00CARLY, well done, and I hope you will allow me and...CARLY, well done, and I hope you will allow me and believe me when I say, I love you in the white dress. Not sure if we can meet, as I have come down with Bronchitis. Maybe a blessing hey!!! Enjoy the Accolades!!! xx PaulineAnonymoushttps://www.blogger.com/profile/13383141359417690635noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-70252682899310023042013-06-01T11:54:17.088+10:002013-06-01T11:54:17.088+10:00Carly you are amazing!!! Your words touch my heart...Carly you are amazing!!! Your words touch my heart. You have so much to give!!! Lovely.xxxmountaingirlblueshttps://www.blogger.com/profile/09565784449566637889noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-89691583185486376452013-06-01T11:52:40.482+10:002013-06-01T11:52:40.482+10:00Carly you are amazing!!! Your words touched my hea...Carly you are amazing!!! Your words touched my heart, you have so much to give!!! Lovely.xxx mountaingirlblueshttps://www.blogger.com/profile/09565784449566637889noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-58224576672947600082013-05-31T23:10:02.496+10:002013-05-31T23:10:02.496+10:00Thanks so much - your support as been amazing xThanks so much - your support as been amazing xCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-52819397335038916832013-05-31T23:09:18.791+10:002013-05-31T23:09:18.791+10:00Thank you so much - on both accounts. I loved bein...Thank you so much - on both accounts. I loved being a part of Ulyana's project. And I loved having so many on board with mine. Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-17337045471193158532013-05-31T23:07:50.042+10:002013-05-31T23:07:50.042+10:00Thank you so much :) wow that's a big complime...Thank you so much :) wow that's a big compliment <br />I don't quite feel grown up though! Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-47796164594009537062013-05-31T23:06:40.520+10:002013-05-31T23:06:40.520+10:00Thank you - that is lovely, and you're frank, ...Thank you - that is lovely, and you're frank, honest and passionate too. Birds of a feather hey xCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-63840641293264713002013-05-31T22:10:43.498+10:002013-05-31T22:10:43.498+10:00Great job. Beautiful...truly, eye-openingly, comp...Great job. Beautiful...truly, eye-openingly, compassionately, honestly and humanly beautiful. Thank you. XBilly Greenehttps://www.blogger.com/profile/16211934646048593201noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-6921785926664517002013-05-31T21:37:08.013+10:002013-05-31T21:37:08.013+10:00There is only one word - beautiful!There is only one word - beautiful!CurlyPopshttps://www.blogger.com/profile/02073292585833387749noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-36245714092602783892013-05-31T20:42:42.940+10:002013-05-31T20:42:42.940+10:00Having you as a friend has made me reflect upon my...Having you as a friend has made me reflect upon my own mental health issues that no one can physically see knowing that when I say I am unwell they don't understand because I look fine. It also made me live my life differently because of the way you live yours. I know I have never told you that but I started living more instead of just existing when you came into my life. I think you are truly amazing and seeing and being a small part of your life has made me feel so lucky that you want to be my friend. You really are an inspiration and your attitude towards life is contagious, so thank you for being you and being my friend. Don't ever change and I hope we get to share more of our lives together over time. I have just read your blog and cried, laughed and felt proud of you and proud to call you my friend. Big love xxxUnknownhttps://www.blogger.com/profile/06148390867906170014noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-24922004815334276442013-05-31T20:04:43.418+10:002013-05-31T20:04:43.418+10:00Carly, you are an inspiration. Carly, you are an inspiration. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-62466642560566656092013-05-31T19:52:36.135+10:002013-05-31T19:52:36.135+10:00I have followed your blog for quiet some time now ...I have followed your blog for quiet some time now and am continually blown away by you Carly.<br />If more people were as giving as you our world would be a better place.<br />Your strength and courage are an inspiration.<br />How proud your parents must be of their incredible daughter who is always reaching out touching lives and truly making a difference.xDebyl1noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-54420359147442650492013-05-31T18:34:49.602+10:002013-05-31T18:34:49.602+10:00Great work Carly, I had no idea people were so cru...Great work Carly, I had no idea people were so cruel about the condition on social media...though I'm not surprised. How wonderful that people will be directed to these amazing stories when googling Ichthyosis in future xCarlihttp://www.tinysavages.comnoreply@blogger.com