tag:blogger.com,1999:blog-1720872153813357167.post1428113332589170097..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month - my story: "I've built a strong sense of resilience - both through having Ichthyosis and as an online writer."Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-1720872153813357167.post-27103792228586076732015-06-01T07:09:36.559+10:002015-06-01T07:09:36.559+10:00Thank you Carly for allowing me to be a part of yo...Thank you Carly for allowing me to be a part of your IAM project. You care so much about others. Like I've told you, try not to worry about those negative people and focus on ALL the good that has come from this month. You're awesome!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-12823374868786641152015-05-31T23:10:27.271+10:002015-05-31T23:10:27.271+10:00I hope you enjoy a well deserved rest superwoman!!...I hope you enjoy a well deserved rest superwoman!!! I know words can be hurtful, but know that you are making a difference to many. Keep Calm and Carry on as they say. XAnonymoushttps://www.blogger.com/profile/03703484758379809039noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-74991997577340244612015-05-31T20:22:08.019+10:002015-05-31T20:22:08.019+10:00You make me want to be better. Keep doing what you...You make me want to be better. Keep doing what you do. I can't wait to see what the future holds for you my dear!Debranoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-11211903081859911772015-05-31T19:40:22.967+10:002015-05-31T19:40:22.967+10:00Well done Carly on all your stories presented for ...Well done Carly on all your stories presented for Ichthyosis Awareness Month! I've read, been moved & felt further empowered living with my own Ichthyosis via others own life stories. The hierarchy mentioned in an above comment within illnesses & the medical profession down to the public & even within different people's lives can be such a challenge. I still live a world at times whereby only my nearest & closest family & friends get or approve of my even mentioning my skin condition, let alone networking, commenting or liking something even on Facebook can feel like dissaproval by some. The attitudes of "put up & shut up" exists to today via certain people & aspects of society. Your work challenges this daily & has inspired me to relax bit by bit even though I still feel the pressures at times. I also know my life could be so much worse or not here at all via my family experience with Ichthyosis, others experiences & the global differences of medical, societal & cultural care & views of those with Ichthyosis.<br />I still value having had your encouragement to write my own story last year because although I have expressed elements of my life to people close to me, medical professionals, or via my Art works (which has been quite upfront at points); I had never had the encouragement or confidence to share my own Ichthyosis quite so openly before. In the year since I have felt less suppressed even though I'm well aware there are those who disapprove of me doing so & I have to tread a fine line on social media at times because it can be stressful to feel that dissaproval even from people within my world, which casts long shadows around me to be as upfront as I ought be able to be.<br />This said many steps have been made & I have Art to be able to express & challenge perceptions.<br />However without the awareness work that you do Carly the world would be a much more repressed one for Ichthyosis, appearance diversity & many individuals around the world like me. <br />So yet again it's been a wonderful May for Ichthyosis Awareness & I am truly humbled & inspired by all the stories I've read & your ongoing projects & blog work. <br />Good luck with all you continue to do! :-)<br />Sam Morris.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-26279339866209251322015-05-31T19:02:25.828+10:002015-05-31T19:02:25.828+10:00I've learned a lot about Ichthyosis and the va... I've learned a lot about Ichthyosis and the various forms. I didn't know how severe it could be for some people. Some posts have made me think more about disability, something I try not to do as I fit more into the 'mental illness' category and don't feel like I fit into the disability community.<br /><br />Your work has also been inspiring, making me think that I may actually be able to make a difference at some point in my life. smile emoticonJnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-31409762558888543372015-05-31T17:53:00.592+10:002015-05-31T17:53:00.592+10:00You're amazing Carly! May has been a fabulous ...You're amazing Carly! May has been a fabulous month for you and I've enjoyed reading the different stories and being touched by the raw honesty. Anonymoushttps://www.blogger.com/profile/01195539977918003393noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-5853263967404504972015-05-31T16:14:20.457+10:002015-05-31T16:14:20.457+10:00Congratulations on yet another great blog project....Congratulations on yet another great blog project. May has been awesome for my family and the rest of the Ichthyosis community. You do great work Carly, keep it up and looking forward to 2016!!! XxCatnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-54533379987959111342015-05-31T15:35:57.155+10:002015-05-31T15:35:57.155+10:00Thank you Carly for your blog, we may be on the ot...Thank you Carly for your blog, we may be on the other side of the world but everyones contribution is an inspiration. <br />On the subject of negative people , there is always some miserable bastard who focuses on successful , life lovers like yourself to vent their pathetic existence , misery, meaness and at worst hate.<br />I wish you the VERY VERY best. <br />Michelenoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-12937209906318455172015-05-31T15:28:57.524+10:002015-05-31T15:28:57.524+10:00Hey Carly.
It's Clare (from the brunch) here....Hey Carly. <br />It's Clare (from the brunch) here.<br />Thanks again for sharing all the stories. I promoted them on my own blog (myzania3350) through May using the title, bolded words and the heading picture. <br />I'm really glad you've done this project. Its so good to learn about the stuff you say. I'm so glad that the meet went well and that this community you've created is thriving. <br />You're a role model, definitely. I hope I'm as comfortable and confident as you are in 15 years....Anonymoushttps://www.blogger.com/profile/13274475287935615674noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-49102388204529119992015-05-31T12:47:08.899+10:002015-05-31T12:47:08.899+10:00May has been a wonderful month! Go you Carly! You ...May has been a wonderful month! Go you Carly! You are such a wonderful role model, what you have done for our Community is beyond amazing! We love you for that. Speak loud, speak proud - you are a bright shining star!!! xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-12982221953607615892015-05-31T12:34:21.254+10:002015-05-31T12:34:21.254+10:00I find that there can be such a 'hierarchy'...I find that there can be such a 'hierarchy' when it comes to chronic illness, and it's something I've experienced first hand. It's unfortunate, but I realised long ago that these people are jealous and small minded, so I'm not shocked that you bore the brunt of such bitter and hurtful comments. Like you, I've learned to 'shake it off' and know that I've created something special when other people have been too lazy to create something of their own. So proud of you! XOCarly-Jay Metcalfehttp://www.bruisesyoucantouch.comnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-88685810596936170412015-05-31T12:08:49.724+10:002015-05-31T12:08:49.724+10:00'm astounded by the criticism you received. Wh...'m astounded by the criticism you received. What the hell is wrong with being proud of organising the Meet? So you should be proud. And exclusion? It was the first bloody time the Meet had been arranged, how could you possibly involve everyone when you didn't know how it will turn out? It certainly does seem more about others than it does about you. I think it is your unabashed honesty that people don't like, well some people anyway because for me it is your unabashed honesty that I freaking love which makes me more honest with myself and others as well. I actually feel sad for those who criticise you because obviously they have some kind of pain that runs very deep, why else criticise someone who is making such a positive change for people with ichthyosis? Thank God it has made you stronger and not changed you.Rachelnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-30186686050188418642015-05-31T12:08:05.096+10:002015-05-31T12:08:05.096+10:00You don't really need any more validation from...You don't really need any more validation from me, you know I think you're a Mighty Girl [Woman]. But as I've read the month's worth of blogs, it occurs to me that your life has followed an ancient principle from the Talmud (Jewish Law). You have touched so many lives, but if you had reached only one, it would have been as if you had touched the whole world: Whoever destroys a soul, it is considered as if he destroyed an entire world. And whoever saves a life, it is considered as if he saved an entire world. — Mishnah Sanhedrin 4:9; Babylonian Talmud, Tractate Sanhedrin 37a. http://en.wikiquote.org/wiki/TalmudCherylnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-17074932604379160802015-05-31T10:48:36.343+10:002015-05-31T10:48:36.343+10:00C not only stands for Carly, but it also stands fo...C not only stands for Carly, but it also stands for Courageous, Caring, Commitment. You may be thousands of miles away Carly, but that is what I see in you, all the way to Boston Mass USA! Keep up the excellent work you do, we appreciate it!Marynoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-4994118575006551742015-05-31T10:44:30.879+10:002015-05-31T10:44:30.879+10:00Til I found your blog Carly I had never heard of I...Til I found your blog Carly I had never heard of Ichthyosis. This month has seen a stellar effort of all the gathering of all the writings of people sharing their stories.. Amazing and inspiring. <br />In my mind I picture it as little ripples spreading and weaving and creating community all across the world. How beautiful. And yeah those ripples don't come without some little dips and ebbs.. But jump on the peak of the next wave of awesomeness and sail on by xx<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-18927577983441819812015-05-31T08:32:41.007+10:002015-05-31T08:32:41.007+10:00Every time I see your fabulous logo it makes me sm...Every time I see your fabulous logo it makes me smile! It's so gorgeous! Keep shining your light, Carly. The work you are doing is so important. As one of your on-line friends, I have learnt so much from you. Your impact is MASSIVE. xxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-20229666119620927082015-05-31T08:00:23.767+10:002015-05-31T08:00:23.767+10:00You are amazing lady - keep fighting the good figh...You are amazing lady - keep fighting the good fight - you are doing so much good.Robyna | The Mummy and the Minxhttp://www.themummyandtheminx.comnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-10559545707493757402015-05-31T07:54:27.481+10:002015-05-31T07:54:27.481+10:00You are an inspiration Carly. Don't let others...You are an inspiration Carly. Don't let others get you down. Big kisses xxxAnonymousnoreply@blogger.com