tag:blogger.com,1999:blog-1720872153813357167.post6489425180510619175..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Experience relayed from patient to parent.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-1720872153813357167.post-91488276768409405662015-04-30T08:15:54.126+10:002015-04-30T08:15:54.126+10:00Ah, a beautiful little girl, so full of promise. Y...Ah, a beautiful little girl, so full of promise. You are doing such good, Carly. As a parent of a recently diagnosed ASD little boy (he is almost 3), it has been so important for me to meet other parents, read the blogs of adults with autism, and recently, to meet an adult with Aspergers. <br />Your lifetime of experience is like gold to these parents, and a great salve, along with that simple and true mantra of what it will be like, and of course, the example of you yourself presents their greatest hope for their children, happy and whole and lovely.Dani @ sand has no homehttp://www.sandhasnohome.comnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-39456968406787854752013-09-09T22:27:38.721+10:002013-09-09T22:27:38.721+10:00Thanks Jeanie
My mum wrote her story here in May ...Thanks Jeanie <br />My mum wrote her story here in May - search the archives :)Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-38873984233092684192013-09-09T22:14:43.994+10:002013-09-09T22:14:43.994+10:00Thanks so much for sharing your experiences - I ha...Thanks so much for sharing your experiences - I have never heard of the condition before, and it is ignorance that can cause so much pain out there. I am so admiring of your support for others - good on you! Saying hi from Digital Carnival.Emilyhttp://mamagoingsolo.comnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-65895896032912696132013-09-09T22:00:00.292+10:002013-09-09T22:00:00.292+10:00That is a gorgeous connection to make, Carly.
W...That is a gorgeous connection to make, Carly. <br /><br />Who did your mother get to turn to when you were a child? How did she navigate?<br /><br />One of the true blessings of this interconnected world these days is what you can offer to these families - awesome.jeaniehttps://www.blogger.com/profile/17322709527738134797noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-83168889624882356872013-09-09T14:55:18.176+10:002013-09-09T14:55:18.176+10:00Lovely pictures, and what a lucky girl having you ...Lovely pictures, and what a lucky girl having you as a role model. And both of them having you to turn to! There's only so much information the 'experts' can share.Emilyhttps://www.blogger.com/profile/15636757667368447102noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-22959520436057550412013-09-09T11:58:58.138+10:002013-09-09T11:58:58.138+10:00I agree with you on so many levels Carly, patients...I agree with you on so many levels Carly, patients experiences are invaluable and far more real than any doctor or journal could be. We have a 6-year old with high health needs and I've actively sought out others in similar situations simply because they 'get it'. Thank you for sharing your story.<br />Visiting via DP Blog Carnival :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-42471294291602544592013-09-07T20:59:44.349+10:002013-09-07T20:59:44.349+10:00How generous of you to share your experiences with...How generous of you to share your experiences with ichthyosis with others, especially parents who only want their little ones to feel better. You've given those parents hope!Literary Winnerhttps://www.blogger.com/profile/00837755012813266399noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-7965299894555349172013-09-02T20:43:55.123+10:002013-09-02T20:43:55.123+10:00Thank you Lisa - she was looking at the TV I think...Thank you Lisa - she was looking at the TV I think! But I would like to think she is looking at me ;) And do think patients' experiences can be just as powerful and important as medical journals. Thank you xxCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-51437922932938860822013-09-02T20:42:46.038+10:002013-09-02T20:42:46.038+10:00Aww thank you so much x
Aww thank you so much x<br />Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-33997221928052674652013-09-02T20:41:52.723+10:002013-09-02T20:41:52.723+10:00Hehe my maternal instincts surprised me! And thank...Hehe my maternal instincts surprised me! And thanks!! Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-92001441441997414282013-09-02T20:41:14.609+10:002013-09-02T20:41:14.609+10:00Thank you FF - and she is gorgeous xxThank you FF - and she is gorgeous xxCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-64878113482780278032013-09-02T17:37:29.304+10:002013-09-02T17:37:29.304+10:00Carly, once again a simple post is just amazing, I...Carly, once again a simple post is just amazing, I love that last pic with Matilda looking at you, just beautiful. Every single word you speak as a strong, resilient woman tells parents that their child's disability does not have to be their definition. It is something they will live with but they are and will be so much more than a big scary word on a doctors page. xxxbuttonbrainhttps://www.blogger.com/profile/02644950461887904205noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-67504712998152377842013-09-02T16:21:10.155+10:002013-09-02T16:21:10.155+10:00Do not worry dear. Every thing will be fine. Becau...Do not worry dear. Every thing will be fine. Because god takes sometime but do every thing fine. God bless you and your sweet little baby.<br /><br />Regards,<br /><a href="http://www.outerbeautysupply.com/" rel="nofollow">Tropic isle jamaican black castor oil</a>Anonymoushttps://www.blogger.com/profile/04453912665747155205noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-84683616630345568762013-09-02T14:46:49.067+10:002013-09-02T14:46:49.067+10:00Love this!! And if you don't mind me saying, y...Love this!! And if you don't mind me saying, you look so comfy with that bub ;-) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-33480711733475316532013-09-02T09:48:55.860+10:002013-09-02T09:48:55.860+10:00Amazing, Carly!
Look at all you've become and ...Amazing, Carly!<br />Look at all you've become and you *didn't* have an adult with Ichthyosis as a role model while you were growing up...the people with Ichthyosis and their families you're reaching out to are SO LUCKY to have you. xAnonymoushttps://www.blogger.com/profile/11769836338951291789noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-14643280329866526052013-09-02T09:24:59.954+10:002013-09-02T09:24:59.954+10:00you are a good role model and that is one cute bab...you are a good role model and that is one cute baby xxxFaux Fuchsiahttps://www.blogger.com/profile/17317677066408030053noreply@blogger.com