tag:blogger.com,1999:blog-1720872153813357167.post6178048525908945454..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month: Maddy and a book giveaway.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-1720872153813357167.post-91558343867362108222014-05-31T21:20:48.404+10:002014-05-31T21:20:48.404+10:00My daughter loves dolphins and would love this boo...My daughter loves dolphins and would love this book, it would be good for her as she has psorasis, anything to help!Kim maxwellhttps://www.blogger.com/profile/14703115710431816677noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-90851622437404437652014-05-27T06:14:59.013+10:002014-05-27T06:14:59.013+10:00Oooohh, I'd love to win a copy! My favorite th...Oooohh, I'd love to win a copy! My favorite thing about IAM is educating about ichthyosis in new and innovative ways, and sharing our stories so that others come to care about and learn about ichthyosis.CWestlakehttps://www.blogger.com/profile/04364243828262993765noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-48227274751755913012014-05-25T19:18:16.066+10:002014-05-25T19:18:16.066+10:00I have not heard of IAM until now. This book is su...I have not heard of IAM until now. This book is such a great cause!Karina Lhttps://www.blogger.com/profile/08472623024078274393noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-20092433503321539052014-05-25T14:42:26.706+10:002014-05-25T14:42:26.706+10:00My favourite thing about IAM has been being able t...My favourite thing about IAM has been being able to introduce my two young children to the individuals and families who contributed their story to the blog. Educating and informing my children is bringing out their compassion, empathy and understanding. They get excited about peoples achievements and feel saddened by negative experiences people endured. joannenoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-10163614031837264472014-05-24T22:00:11.960+10:002014-05-24T22:00:11.960+10:00The best part of IAM is meeting new families and b...The best part of IAM is meeting new families and building this wonderful community. Knowing that we are not alone has helped me tremendously as a mother of a 4 year old with lamellar. I do not know what I would do without the love and support from this community!Karen Ekonenhttps://www.blogger.com/profile/13785165347794839999noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-27462284287396169332014-05-24T09:16:00.531+10:002014-05-24T09:16:00.531+10:00My favourite thing about IAM is the openness I fee...My favourite thing about IAM is the openness I feel towards strangers who stare or ask questions out in public - I feel more inclined to engage in conversation and give them one of our information cards during May when I keep in mind that the more education about ichthyosis, the better.Courtneynoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-69068816934375840582014-05-24T00:01:05.043+10:002014-05-24T00:01:05.043+10:00The best thing about Ichthyosis Awareness Month fo...The best thing about Ichthyosis Awareness Month for me has been seeing the wonderful support for others with Ichthyosis within the community & the push to really educate those of us with little or no knowledge of this condition. Keep up the great work :)Chris Loughrynoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-1590994085095543442014-05-23T22:51:54.653+10:002014-05-23T22:51:54.653+10:00My favorite thing about IAM is sharing our little ...My favorite thing about IAM is sharing our little princesses with anyone who will take the time to know them. You afforded that, Carly, when you invited me to make a guest post. Our little darlings are so delightful, I just want them to be known for their funny, quirky, jubilant spirits. And I feel such a kindred to Barbara whose grandchildren have EKV just like A & JE. There is absolutely NOTHING like being Grandmawmie. It fills up a part of me that I didn't know was there until I became a grandparent and realized there had been this dormant, never realized wonder that makes me smile. It could possibly be compared to getting to know someone w/ a visible difference and finding that someone fills an otherwise empty place that you didn't even know was a wasteland inside you.Kittyhttps://blu169.mail.live.com/default.aspx?id=64855&owa=1&owasuffix=owa/noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-28622061856910197852014-05-23T21:33:25.752+10:002014-05-23T21:33:25.752+10:00Hi Carly,
I tried to purchase a copy of the book a...Hi Carly,<br />I tried to purchase a copy of the book and I can't seem to get to the end of checkout. I then tried the emails and that didn't work either. I was directed to other websites.<br />Am I doing something wrong???Anonymoushttps://www.blogger.com/profile/12942139407600772482noreply@blogger.com