tag:blogger.com,1999:blog-1720872153813357167.post5302758778505127014..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Meeting Valerie and Stephane - also affected by Ichthyosis.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-1720872153813357167.post-21120066827498170212013-08-20T10:22:56.433+10:002013-08-20T10:22:56.433+10:00I've met so many great people through blogging...I've met so many great people through blogging and have found it a real life line at times. I've only just discovered your blog and looking forward to reading more.Mystery Casehttps://www.blogger.com/profile/15204666798327984964noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-61705838623717430892013-08-19T21:00:46.709+10:002013-08-19T21:00:46.709+10:00They say you change the world, one step at a time....They say you change the world, one step at a time. I think there's no question you're doing that. The blog community makes any distance seem small and opens up connections we never dreamed of. You're an inspiration to many :)Jensterhttps://www.blogger.com/profile/16520768559004876077noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-80368579331878258532013-08-19T20:55:18.851+10:002013-08-19T20:55:18.851+10:00The best thing about blogging is making those real...The best thing about blogging is making those real connections and meeting others who do actually understand - I've felt the same with meeting others who understand albinism and the challenges of autism. I'm so glad you got to meet Valerie and Stephane and had such a lovely experience with them too!Kirstyhttps://www.blogger.com/profile/14645347058596682545noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-42148361125439466702013-08-19T19:31:19.459+10:002013-08-19T19:31:19.459+10:00What you have had to deal with from strangers must...What you have had to deal with from strangers must have taken you a long time to get used to - you are obviously a strong and determined woman Carly, what a great role model. I am hell bent on teaching my children about visible difference. Kids will stare, but with parents who can guide their questions, they will learn to accept! Glad you meet such lovely people - but of course! They are Kiwis (just like me) :) EmilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-22878038280458626592013-08-19T16:51:13.619+10:002013-08-19T16:51:13.619+10:00Carly I think you're amazing! I have no way o...Carly I think you're amazing! I have no way of truly understanding what you have faced or continue to experience. But, what I draw from reading your blog is your ability to embrace life & live it so engagingly. I know people who are considered "normal" who don't have a thumbnail's worth of the spirit you do. <br /><br />It's always lovely to meet those we consider to be kindred, it reassures us of our connection to this world, no matter where we come from.<br /><br />Jodie @FreshHomeCookhttps://www.blogger.com/profile/14696515812865340669noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-60755929931014860942013-08-19T12:41:53.738+10:002013-08-19T12:41:53.738+10:00Carly I have followed your blog for a little while...Carly I have followed your blog for a little while now and am so in awe of the great community you are building here and the fact you are changing people's lives, one person at a time. One experience at a time. Big hugs to you xAnonymoushttps://www.blogger.com/profile/15675452153227875223noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-77473073685067482222013-08-19T12:30:39.684+10:002013-08-19T12:30:39.684+10:00It's great that you were able to meet others w...It's great that you were able to meet others who understand exactly what it's like. I'd never actually heard of Itchyosis before, but I always suffered with rosacea growing up and the comments and stares I've gotten from that were bad enough. Can't imagine what you've been through. xoNesshttps://www.blogger.com/profile/06860187504607445377noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-26086404432145830702013-08-19T09:52:48.314+10:002013-08-19T09:52:48.314+10:00It's always great to meet up with other member...It's always great to meet up with other members of your "tribe" whether it's bloggers, or other Mums, or people with Icthyosis. We are so blessed these days to be able to connect online!Janet Camillerihttps://www.blogger.com/profile/14040750107420193756noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-56303204587562502772013-07-26T12:03:39.572+10:002013-07-26T12:03:39.572+10:00PS - I just wanted to quickly say that I have foll...PS - I just wanted to quickly say that I have followed your blog for a long time now and I have seen such a change in the way you write about Icthyosis and the way it affects you. There has been such an immense period of growth for you, Carly and it's a pleasure and an honour that we get to witness that. xMaxabellahttps://www.blogger.com/profile/15761220164069379437noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-32609654912572504432013-07-26T12:02:15.201+10:002013-07-26T12:02:15.201+10:00Meeting 'your' people (in an Icthyosis kin...Meeting 'your' people (in an Icthyosis kinda sense anyway!) is such a comforting, relaxing sort of experience. They 'get it' - that little kernel of yourself that just can't quite be fully explained to people who haven't been where you've been. They've got the map.<br /><br />xMaxabellahttps://www.blogger.com/profile/15761220164069379437noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-77257581337789541042013-07-17T08:48:59.997+10:002013-07-17T08:48:59.997+10:00Sounds like a lovely worthwhile meeting. Really in...Sounds like a lovely worthwhile meeting. Really interesting post Carly. Makes me think one practical way of supporting someone with a visible difference is helping arrange a meet up with someone in the same boat as them. <br /><br />It's different in many ways, but I feel that about being in LGBT groups. Suddenly we're all equal and our identities can come out.<br />Xglenjanhttps://www.blogger.com/profile/01191291903094841310noreply@blogger.com