tag:blogger.com,1999:blog-1720872153813357167.post2769835293639445759..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: The Good GP - crucial for patients with rare medical conditions. (Brought to you by The Royal Australian College of General Practitioners.)Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1720872153813357167.post-87971533104921125522015-10-21T11:29:32.292+11:002015-10-21T11:29:32.292+11:00(AKA Clare K.)
My disability, though mild, meant I...(AKA Clare K.)<br />My disability, though mild, meant I had to visit the paediatrician regularly as a kid. As a baby it was *very* regular check-ups, but as I got older they stretched out to yearly. He retired when I was in Y7, which was a shame for us - he was good! GPs - regardless of speciality - are known as 'gate-keepers' of health care in Australia by other health professionals (at least I think so based on uni stuff) because they refer us on to other professionals. Having a good GP is important. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-92182342822991982892015-10-19T08:01:59.213+11:002015-10-19T08:01:59.213+11:00We have not had particularly helpful GP's and ...We have not had particularly helpful GP's and many of our experiences with specialists haven't been that great either. I tend to avoid appointments unless I am desperate and just figure things out for myself or use this type of network. We have had a specialist at our local women's and children's hospital Google Ichthyosis while we sat there! Didn't even bother to glance through our six inch thick file. Our most common responses are that I know more about Ichthyosis than they do so they can't help or I have to educate them which helps spread knowledge but I then have to pay them for it and it uses up my time. Many medical practitioners are caring and kind but don't seem to have the time or the inclination to learn enough to be able to help us. Also I think each person's symptoms and responses can be different so it's hard unless you actually are there every day seeing reactions to weather, creams, diet etc. I am very glad others have a better experience than ours.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-21970959074513355402015-10-19T08:00:20.293+11:002015-10-19T08:00:20.293+11:00Not just rare conditions either. This could apply ...Not just rare conditions either. This could apply to anyone with a complicated diagnosis from multiple learning problems (my daughter) to arthritis, peripheral neuropathy, metabolic disorder and anxiety (mine). The good GPs are like gold and you hang on to them. I'm struggling at the moment to find one though.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-8645736923820268812015-10-19T07:51:37.503+11:002015-10-19T07:51:37.503+11:00I love my GP. Even though I don't have any re...I love my GP. Even though I don't have any real medical conditions he has seen me and my family through every part of our lives. He is one of the people I most trust.<br /> Anonymoushttps://www.blogger.com/profile/10887788397706091464noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-28323416146953532352015-10-19T07:25:12.804+11:002015-10-19T07:25:12.804+11:00Carly this is a great post and so relevant to peop...Carly this is a great post and so relevant to people with rare conditions.Anonymousnoreply@blogger.com