tag:blogger.com,1999:blog-1720872153813357167.post2677594159654320188..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month: Lucia's story ~ looking at the Wonders of Netherton's Syndrome.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-1720872153813357167.post-69844125819815843332015-01-10T08:40:51.427+11:002015-01-10T08:40:51.427+11:00Thank you for sharing your story. We have a daught...Thank you for sharing your story. We have a daughter with NS too and we are living in Adelaide. It's comforting to know that they can grow up active, beautiful and wonderful. Lucius Phanghttps://www.blogger.com/profile/02131155567724518442noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-34324721353717033672013-05-14T15:39:09.241+10:002013-05-14T15:39:09.241+10:00WOW I just loved the way you turned all the differ...WOW I just loved the way you turned all the differences into benefits for you and the family. I had a big smile on my face. And Lucia you are just gorgeous sweetie. And despite the stares, some people will remember you and greet you with affection. you deserve it sweetie. You are just beautiful, who wouldn't be able to resist. :) Love Pauline Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-64871775331780362032013-05-12T12:49:05.713+10:002013-05-12T12:49:05.713+10:00Thank you for sharing. Mama bear protectiveness is...Thank you for sharing. Mama bear protectiveness is just natural. But you are raising a wonderful little girl there. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-41827327424276617782013-05-11T19:49:18.585+10:002013-05-11T19:49:18.585+10:00Wow. What a great little story and what an awesome...Wow. What a great little story and what an awesome little girl with such strength. Melodyhttps://www.blogger.com/profile/05681227038111050561noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-61335388961549145022013-05-11T16:41:40.792+10:002013-05-11T16:41:40.792+10:00What a beautiful attitude you have and it certainl...What a beautiful attitude you have and it certainly pays off in your daughter's lovely smile. I too had a 'failure to thrive' baby and I must say it saves heaps of money in clothes! Their cuteness also adds to people's friendliness even though my daughter had a different shape to her chin than others. Her tiny bones made no difference to her brains and even at 5 foot and size 5 shoe now she has gone on to complete an accounting course and works hard to overcome her natural shyness. Cherriewillywagtailhttps://www.blogger.com/profile/04161501326916060091noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-54798540508330965092013-05-11T16:26:38.469+10:002013-05-11T16:26:38.469+10:00We'd love to connect with you too:)We'd love to connect with you too:)Francescanoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-7038486294497735292013-05-11T16:24:50.921+10:002013-05-11T16:24:50.921+10:00Thanks Nathalie, for all your lovely comments - Lu...Thanks Nathalie, for all your lovely comments - Lucia would love to receive your present, and if we can send anything down to you to share with the children you work with, we'd be happy to help, FrancescaFrancescanoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-64543309071792949442013-05-11T13:12:06.090+10:002013-05-11T13:12:06.090+10:00If I saw Lucia I might have guessed scleroderma.
...If I saw Lucia I might have guessed scleroderma.<br /><br />You're a cute kid, Lucia. Seven begins some of the best years of childhood--you're big enough to have a little independence but small enough that there are usually adults nearby to help if anything goes wrong. <br /><br />So go out, have adventures, and run those adults ragged trying to keep up with you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-43486118993094196862013-05-11T10:50:56.688+10:002013-05-11T10:50:56.688+10:00Lucia is so cute!! I absolutely love this post - i...Lucia is so cute!! I absolutely love this post - it is honest but uplifting, and those are the best kinds of reads. Hope to connect with this family soon!CWestlakehttps://www.blogger.com/profile/04364243828262993765noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-78696406651587440062013-05-11T08:41:23.851+10:002013-05-11T08:41:23.851+10:00Hello Lucia thank you for sharing what it's li...Hello Lucia thank you for sharing what it's like for you and yes you are beautifully unique. I work with lots of children and I'm going to talk to them about you are, so they learn about how different everyone is. I'd also love to send you a present for sharing how you feel you can ask mummy if that's ok and I'll send it to Carly and she can send it to you. Lots of love<br />Nathalie xEasy Peasy Kidshttps://www.blogger.com/profile/01952923643103485105noreply@blogger.com