tag:blogger.com,1999:blog-1720872153813357167.post2267226496904055331..comments2024-01-16T01:42:41.699+11:00Comments on Tune into Radio Carly: Ichthyosis Awareness Month - Remembering Thomas. Today he would have
been one year old.Carly Findlayhttp://www.blogger.com/profile/01368145710452826385noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-1720872153813357167.post-51193533370203947462015-05-25T17:05:09.775+10:002015-05-25T17:05:09.775+10:00Thanks for sharing Carly. My heart goes out to the...Thanks for sharing Carly. My heart goes out to the family. <br />Such a touching story, so sad. Hope everything goes well with their new arrival.<br /><br />Clare<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-20100802136185202762015-05-22T23:31:06.446+10:002015-05-22T23:31:06.446+10:00What a beautiful story. Very touching. You said so...What a beautiful story. Very touching. You said so many things that we went through with our little man. My heart breaks as I read this what a beautiful little man you had. All the best with your new little buddle when they arrive. May thomas never be forgotten and his spirits live on.Caseynoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-80855693386029825542015-05-22T17:01:31.425+10:002015-05-22T17:01:31.425+10:00Thank you for sharing this story. Loads of love an...Thank you for sharing this story. Loads of love and respect to Thomas' parents xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-51442776330318693062015-05-22T16:51:27.155+10:002015-05-22T16:51:27.155+10:00Thank you for sharing this story. I remember heari...Thank you for sharing this story. I remember hearing about the news within the ichthyosis community and feeling devastated for the parents. Its a scary reminder of how serious ichthyosis can be. I wish the parents lots of luck with their new arrival xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-59011327141549787632015-05-22T14:00:45.249+10:002015-05-22T14:00:45.249+10:00Our son Myles has Lamellar Ichhtyosis and he was b...Our son Myles has Lamellar Ichhtyosis and he was born on May 22nd 2007. He will be 8 tomorrow and I count my blessings daily that we have him in our life. Thank you for sharing your story. I remember the day he was born as if it was yesterday. Our story is a lot like yours. He was taken to another hospital an hour away because there is no NIC Unit where we live. We had never heard the word Ichthyosis. The lord has big plans for our children, you are right. We just don't know what that is. Congratulations on being blessed with bringing another beautiful spirit into this world. Hugs and peace. TMPOLhttps://www.blogger.com/profile/15604794873234801377noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-67713351288361694582015-05-22T13:55:57.146+10:002015-05-22T13:55:57.146+10:00Beautiful testimony. Thank you for sharing and pra...Beautiful testimony. Thank you for sharing and prayers for you both as God blesses you with another baby! Anonymoushttps://www.blogger.com/profile/10838398033025155446noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-81673187095226386432015-05-22T10:24:35.523+10:002015-05-22T10:24:35.523+10:00Thank you for sharing Thomas' story. Heart bre...Thank you for sharing Thomas' story. Heart breaking in the extreme. Pips xxPipshttps://www.blogger.com/profile/04399299762568401724noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-39190263350291282402015-05-22T08:57:51.907+10:002015-05-22T08:57:51.907+10:00Thank you for sharing Thomas' story with us. I...Thank you for sharing Thomas' story with us. I pray that God will be with you and your husband today as you remember the life of your little boy. Psalm 46 tash @ Little Bit of Thymehttps://www.blogger.com/profile/09817498832895478176noreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-15871711930695600432015-05-22T08:45:38.286+10:002015-05-22T08:45:38.286+10:00Thomas lived a short life, but what wonderful pare...Thomas lived a short life, but what wonderful parents he had. The hope you will see him again -- healed -- is so wonderful. I wish you luck with your second child. Thomas will alway be there to look over you and his little brother or sister. God bless <3Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-25782587762492006052015-05-22T08:02:45.302+10:002015-05-22T08:02:45.302+10:00Thank you for sharing Thomas's story, so very ...Thank you for sharing Thomas's story, so very sad. The three of you went through so much together as a family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1720872153813357167.post-14299864632812892902015-05-22T07:35:59.735+10:002015-05-22T07:35:59.735+10:00Thank you for sharing Thomas's life with us. S...Thank you for sharing Thomas's life with us. So sad.Anonymousnoreply@blogger.com